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Updated Articles and Resources

By Lori Alma

Updated Articles and Resources
  • What to Do After Your Child is Diagnosed with Cystic Fibrosis Created: Wednesday, May 06, 2009 Updated: Thursday, July 03, 2014
    After your child is diagnosed with cystic fibrosis, what should you do next? Learn what your five most important first steps should be.
  • Airway Clearance Vests Created: Sunday, November 23, 2008 Updated: Thursday, July 03, 2014
    High-frequency chest wall oscillation (HFCWO) vests have become an increasingly popular choice for airway clearance therapy among people with cystic fibrosis. Learn more about HFCWO vests – ...
  • What is the Life Expectancy of Someone With Cystic Fibrosis? Created: Monday, July 13, 2009 Updated: Thursday, July 03, 2014
    How long can someone born today with cystic fibrosis expect to live?
  • Genetics of Cystic Fibrosis Created: Wednesday, June 18, 2008 Updated: Thursday, July 03, 2014
    Cystic fibrosis is the most common inherited autosomal recessive disease. It is caused by a mutation of the CFTR gene. People can be carriers of cystic fibrosis without knowing about it, and can pa...
  • Fat Soluble Vitamins vs Water Soluble Vitamins Created: Sunday, September 28, 2008 Updated: Wednesday, July 02, 2014
    Learn about the differences between fat soluble and water soluble vitamins, how these two types of vitamins are used by the body and why fat soluble vitamins are especially important in people with...
  • Make Your Own Disinfectant Solution with Household Bleach - and Use it Safely Created: Sunday, July 12, 2009 Updated: Wednesday, July 02, 2014
    You don't have to buy expensive cleaning products to kill germs in your home. Ordinary household bleach can be diluted to make a solution that's strong enough to kill most germs. Learn how to mix a...
  • Colonization Created: Monday, February 16, 2009 Updated: Friday, June 27, 2014
    What is colonization, and what does it mean to people with cystic fibrosis?
  • What is 65 Roses? What Does It Have to Do With CF? Created: Friday, June 20, 2008 Updated: Saturday, June 21, 2014
    What do roses have to do with cystic fibrosis?
  • Beyond Manual Chest Physiotherapy Created: Tuesday, December 02, 2008 Updated: Friday, June 20, 2014
    When you’re ready to move beyond manual chest physiotherapy, there are several devices that you can use for airway clearance. Get to know these tools and how they can help you with your airwa...
  • Feeding Tube Do’s and Don’ts Created: Sunday, March 15, 2009 Updated: Thursday, June 19, 2014
    Do you know what to do to keep your feeding tube working as it should? Do you know how to recognize the signs of infection? What should you do if your feeding tube come out or becomes clogged? Get ...
  • Malnutrition and Cystic Fibrosis Created: Friday, June 20, 2008 Updated: Thursday, June 19, 2014
    Malnutrition is a common cause of poor growth in people with cystic fibrosis (CF) that occurs because of the effect the disease has on the pancreas. It is often the first symptom that causes doctor...
  • Notable People with Cystic Fibrosis Created: Sunday, June 22, 2008 Updated: Wednesday, June 18, 2014
    Find inspiration by reading the stories of some notable cystic fibrosis (CF) patients. Despite living with the challenges of CF, the people in these stories have achieved success."
  • Genetic Testing for Cystic Fibrosis Created: Sunday, July 13, 2008 Updated: Sunday, June 15, 2014
    The most widely available genetic test for CF is a blood test that looks for the most common mutations of the CFTR gene." itemprop="description">>
  • Understanding Cystic Fibrosis Created: Tuesday, May 20, 2008 Updated: Friday, June 13, 2014
    Looking for information about cystic fibrosis (CF)? Read about what cystic fibrosis is, what causes it, common symptoms, diagnosis methods and treatment. Also read about life with CF, prognosis, an...
  • The Most Essential Airway Clearance Technique Created: Sunday, November 09, 2008 Updated: Friday, June 13, 2014
    Do you know which airway clearance technique (ACT) is the single most important one for people with cystic fibrosis to use? Learn about this basic technique and how to do it correctly."
  • Lung Transplant For the Treatment of Cystic Fibrosis Created: Sunday, February 22, 2009 Updated: Tuesday, June 10, 2014
    When damage from cystic fibrosis is severe, lung transplantation becomes a treatment option that can add years to your life. When is it time to start thinking about a transplant, and what should yo...
  • Prenatal Testing For Cystic Fibrosis Created: Tuesday, August 11, 2009 Updated: Tuesday, June 10, 2014
    Prenatal genetic tests can detect cystic fibrosis in your unborn child, but the testing is not for everyone. Find out who should be tested, how the test is done, and what the results will tell you....
  • Steatorrhea as a Symptom of Cystic Fibrosis Created: Sunday, October 19, 2008 Updated: Tuesday, June 10, 2014
    Bulky foul-smelling stools are often one of the first symptoms to raise suspicion that a child might have cystic fibrosis. Learn what causes these abnormal stools in people with cystic fibrosis, a...
  • 10 Things You Should Know About Burkholderia Cepacia Created: Wednesday, February 18, 2009 Updated: Wednesday, June 04, 2014
    Burkholderia cepacia is a relatively rare but life-threatening complication of cystic fibrosis, and one that often strikes fear into the hearts of people with cystic fibrosis. Find answers to ten c...
  • Symptoms of Cystic Fibrosis Created: Saturday, May 24, 2008 Updated: Tuesday, May 27, 2014
    Cystic fibrosis (CF) is a chronic, progressive disease. Cystic fibrosis symptoms increase as the disease progresses. Learn about the first symptom of cystic fibrosis, as well as the early and advanced cystic fibrosis symptoms.
  • Organs Affected by Cystic Fibrosis Created: Thursday, May 22, 2008 Updated: Tuesday, May 27, 2014
    Cystic fibrosis is widely recognized as a lung disease, but it is actually a disease that affects many parts of the body. Cystic fibrosis also affects the pancreas, and can cause damage to the live...
  • What Does it Mean to Be a Cystic Fibrosis Carrier? Created: Monday, July 20, 2009 Updated: Tuesday, May 27, 2014
    Newborn and prenatal genetic testing is quite common these days. Consequently, well-kept secrets that once sat quietly in our chromosomes are making themselves known. Cystic fibrosis is one of thos...
  • Things You Should Know Before Getting Pregnant Created: Wednesday, May 28, 2008 Updated: Saturday, May 17, 2014
    Women with cystic fibrosis are often capable of conceiving a child, but pregnancy requires some planning. Learn about identifying risks to you and your baby and strategies to prevent complications ...
  • Enzyme Created: Sunday, June 01, 2008 Updated: Saturday, May 17, 2014
    An enzyme is a substance that initiates a chemical reaction.
  • Common Medications in Cystic Fibrosis Treatment Created: Wednesday, August 27, 2008 Updated: Thursday, May 01, 2014
    People with cystic fibrosis (CF) take medications for their entire lives to control symptoms and prevent complications of the disease. Find out what you need to know about the most commonly prescri...
  • Newborn Screening for Cystic Fibrosis Created: Sunday, July 06, 2008 Updated: Wednesday, April 30, 2014
    Newborn screening for cystic fibrosis (CF) is now common practice in most states and many countries. Learn more about the benefits of screening, the methods used, what the results mean, and what ki...
  • The Most Common Organisms in Cystic Fibrosis Lung Infections Created: Sunday, March 22, 2009 Updated: Wednesday, April 30, 2014
    Lung infections are a serious problem for those with cystic fibrosis (CF), and they are often caused by organisms that are not as common or not as troublesome in those who don't have CF. Find out w...
  • Cystic Fibrosis–Related Diabetes Created: Sunday, October 05, 2008 Updated: Thursday, April 17, 2014
    Many people with cystic fibrosis (CF) develop an additional condition called" itemprop="description"> Monday, September 22, 2008 Updated: Thursday, April 17, 2014
    In order to fully understand how cystic fibrosis causes breathing problems, it is important to understand how breathing normally works. Take a step-by-step look at what happens to the air you breat...
  • Sweat Test Created: Sunday, July 20, 2008 Updated: Friday, April 11, 2014
    The sweat test, also known as the sweat chloride test, is the most common test used to diagnose cystic fibrosis." itemprop="description">> Sunday, July 26, 2009 Updated: Friday, April 11, 2014
    One of the first things people ask after their cystic fibrosis diagnosis is if there is a cure. Here's the answer, along with some further details.
  • The Cystic Fibrosis Transmembrane Conductance Regulator Gene Created: Sunday, November 01, 2009 Updated: Wednesday, April 09, 2014
    In order to really understand what cystic fibrosis (CF) is, you need to understand the cystic fibrosis transmembrane conductance regulator (CFTR) gene." itemprop="descriptit3'" --> itemprop="descri...

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