From the article: Living with Cystic FIbrosis
What was your experience with your child's cystic fibrosis (CF) diagnosis, and the events that led up to it? What is a typical day like for you and your family, and what do you do to cope? Whether your child was diagnosed with CF recently or years ago, you've got a story to tell, and we'd love to hear it! Share Your CF Story
Need a friend?
- everyone who have CF, and need a friend to share your feelings. You can contact me meiske.regina.a@gmail.com :)
- —Guest Meiske
cf surprise
- At 5 months pregnant I was excited to hear I was having a baby boy.I had my other son 5 years back with no complications so I would be fine when it came to having this one.The day JAMIE was born everything went wrong.I had a very long painful labour then when Jamie was born within 24 hrs we were both flown thanks to royal flying doctors to Women's and Children's Hospital.I had been informed Jamie had blocked bowels.After being there for some time I had learnt all about cystic fibrosis and was told he had to have a sweat test to see if he has it.It turned out he did that explained why he was blocked in the bowels and also lost weight because he needed enzymes.He is now 1 years old the 24th of this month Happy Birthday, JAMIE and has been in hospital sick once since the visit when he was born.The PICC line Jamie had in made me so sad, but I know it has to be done.I'm hoping he doesn't get sick too much in the future and can do as much as he can.I'm from the country any good support refs?
- —Guest jaydey
D.C.L.
- Hello my name is DeAnna Lowry, I am a 17yrs old female. I was diagnosed with Cystic Fibrosis at the age of five months, at the age of 11, I was diagnosed with Asthma, at the age of 12, I was diagnosed with Diabetes. At the age of 14, I was diagnosed with Grandmal Seizures. I am 17 now and have been diagnosed with Mycobactrium Avium, and Mycobactrium abcessus. I am in the hospital so much that I don't have any friends. I had to be home school and next year I am looking to graduate and attend college. I just wanted to know is there anyone who has any or all of my complications? I can be reached at margaret_lowry@hotmail.com Thanks
- —Guest DeAnna Lowry
trying to live a "normal" teenage life
- okay lets start this story out old fashion shall we. my name is lauren im turning 15 in a few weeks i live with cf day to day and with cf their are no off days in fact as i type im in the hospital. anyways everyday things become difficult with cf such as breathing,digesting,weight gain,etc. and all we wanna do is live the normal everyday life but all we know is treatment,meds, and trying to keep up with normal activity. which is difficult. i personally dont tell many people about me having cf because i wanna be considered normal. but most people at my school know i have it because my school is really small. i hate the fact that we have so much responsiblity and just cant enjoy a normal teenage years. i was diagnosised at 4months. so ive battled it most of my life and apparently winning as of right now. i hate when people talk bout how im different and i cant do this or that because i have breathing probs. i mean hello im just like you i have feelings too. well i g2g -lauren cf since94
- —Guest Lauren Meredith
