Cystic Fibrosis: Most Popular Articles
Burkholderia cepacia is a relatively rare but life-threatening complication of cystic fibrosis, and one that often strikes fear into the hearts of people with cystic fibrosis. Find answers to ten common questions about B. cepacia, and learn what you can do to reduce your risk.
You don't have to buy expensive cleaning products to kill germs in your home. Ordinary household bleach can be diluted to make a solution that's strong enough to kill most germs. Learn how to mix and use a bleach solution safely.
Learn about the differences between fat soluble and water soluble vitamins, how these two types of vitamins are used by the body and why fat soluble vitamins are especially important in people with cystic fibrosis.
How long can someone born today with cystic fibrosis expect to live?
Cystic fibrosis is widely recognized as a lung disease, but it is actually a disease that affects many parts of the body. Cystic fibrosis also affects the pancreas, and can cause damage to the liver, gallbladder, intestines, and reproductive system.
Looking for information about cystic fibrosis (CF)? Read about what cystic fibrosis is, what causes it, common symptoms, diagnosis methods and treatment. Also read about life with CF, prognosis, and what to do if your child has cystic fibrosis.
Cystic fibrosis (CF) is a chronic, progressive disease. Cystic fibrosis symptoms increase as the disease progresses. Learn about the first symptom of cystic fibrosis, as well as the early and advanced cystic fibrosis symptoms.
Newborn and prenatal genetic testing is quite common these days. Consequently, well-kept secrets that once sat quietly in our chromosomes are making themselves known. Cystic fibrosis is one of those secrets that many people are surprised to discover lurking in their genes. Find out more about what it means to be a cystic fibrosis carrier.
Do you know which airway clearance technique (ACT) is the single most important one for people with cystic fibrosis to use? Learn about this basic technique and how to do it correctly.
Don't get caught in a storm unprepared. Discover the ten things that people with cystic fibrosis must do to stay safe in times of disaster.
Allergic bronchopulmonary aspergillosis (ABPA) is a condition that sometimes occurs in those with cystic fibrosis. Learn what ABPA is, and who is at risk for developing it. Learn about symptoms, diagnosis, treatment, and some simple things you can do to reduce your risk of developing ABPA.
Lung infections are a serious problem for those with cystic fibrosis (CF), and they are often caused by organisms that are not as common or not as troublesome in those who don't have CF. Find out what you need to know to prepare for the infections that you are likely to encounter.
Cystic fibrosis is the most common inherited autosomal recessive disease. It is caused by a mutation of the CFTR gene. People can be carriers of cystic fibrosis without knowing about it, and can pass the gene on to their children. A baby can be born to two cysic fibrosis carriers even if nobody in the family has ever had cystic fibrosis. Learn about the role genes play in cystic fibrosis.
Pseudomonas aeruginosa infection is a frequent complication in many people with cystic fibrosis. Complication from Pseudomonas aeruginosa infections are the most common cause of death for people with custic fibrosis. TOBI is an inhaled antibiotic that is usually prescribed to treat Pseudomonas aeruginosa in people with cytic fibrosis.
Cystic fibrosis treatment involves a combination of medications, therapies, diet, and exercise aimed at preventing complications and slowing progression of the disease. Learn more about the cystic fibrosis treatment approach.
High-frequency chest wall oscillation (HFCWO) vests have become an increasingly popular choice for airway clearance therapy among people with cystic fibrosis. Learn more about HFCWO vests – how they work, who they’re for, and the advantages and disadvantages of using them.
Aspergillus is an organism that can cause problems for people with cystic fibrosis. Learn more about aspergillus and the risk it poses to people with cystic fibrosis.
Preganant women with cystic fibrosis need to maintain nutrition, fight infections, and continue medications and treatments.
Tube feedings can help meet your nutritional needs when you can’t get what you need from food. Learn about the criteria that doctors use to determine when tube feeding is needed, some long and short-term tube feeding options, and other basic info about tube feedings.
Chest physical therapy (CPT) is a part of the daily treatment routine for people with cystic fibrosis. Proper technique is very important when performing chest physical therapy. Follow these steps to be sure you are doing CPT correctly and effectively.
Bulky foul-smelling stools are often one of the first symptoms to raise suspicion that a child might have cystic fibrosis. Learn what causes these abnormal stools in people with cystic fibrosis, and what can be done to treat them.
What are pulmonary function tests?
Women with cystic fibrosis are often capable of conceiving a child, but pregnancy requires some planning. Learn about identifying risks to you and your baby and strategies to prevent complications of pregancy with cystic fibrosis.
How the lungs fill up with air when they are not hollow. Page 3.
When damage from cystic fibrosis is severe, lung transplantation becomes a treatment option that can add years to your life. When is it time to start thinking about a transplant, and what should you expect once you do get on the transplant list?
Exercise is an important part of cystic fibrosis treatment. Learn about the benefits of physical activity, the recommended type and amount of exercise that should be included, and ways to ensure a successful workout.
The Cystic Fibrosis Foundation (CFF) is an important resource for those with cystic fibrosis. Learn more about the CFF, and what they can do to help you.
Hypertonic saline is a promising new treatment that can help thin secretions and reduce respiratory infections in people with cystic fibrosis.
In order to really understand what cystic fibrosis (CF) is, you need to understand the cystic fibrosis transmembrane conductance regulator (CFTR) gene.
Malnutrition is a common cause of poor growth in people with cystic fibrosis (CF) that occurs because of the effect the disease has on the pancreas. It is often the first symptom that causes doctors to suspect that a patient might have cystic fibrosis. Learn more about the causes of malnutrition, and the treatment approach that can restore adequate nutrition and normal growth patterns.
Many people with cystic fibrosis (CF) develop an additional condition called
Phthalates are a potentially toxic group of chemicals that are found in some brands of pancreatic enzymes. Learn what phthalates are, why phthalates are used and what you need to know to help you put phthalate safety concerns in perspective.
What do roses have to do with cystic fibrosis?
One of the first things people ask after their cystic fibrosis diagnosis is if there is a cure. Here's the answer, along with some further details.
The most widely available genetic test for CF is a blood test that looks for the most common mutations of the CFTR gene.
Getting the flu can be a big problem for people with cystic fibrosis. Find out what problems influenza can cause, and why people with CF should try to avoid it.
Living with cystic fibrosis requires a lot of planning, work, and sacrifice. Learn strategies to help cope with the demands, ease the chaos, and settle in to a normal life when living with cystic fibrosis.
The sweat test, also known as the sweat chloride test, is the most common test used to diagnose cystic fibrosis.
Newborn screening for cystic fibrosis (CF) is now common practice in most states and many countries. Learn more about the benefits of screening, the methods used, what the results mean, and what kind of follow up to expect after the results are in.
What is colonization, and what does it mean to people with cystic fibrosis?
Many women with cystic fibrosis (CF) have problems with bladder leakage, also known as urinary incontinence. Learn about the causes of urinary incontinence in women with CF, and simple exercises that can be done to correct the problem.
Find inspiration by reading the stories of some notable cystic fibrosis (CF) patients. Despite living with the challenges of CF, the people in these stories have achieved success.
Tobi is an antibiotic used to treat Pseudomonas aeruginosa, a bacteria that grows in the lungs of many people with cystic fibrosis. Learn what you need to know about Tobi,including possible side effects, safety warnings and financial assistance.
One little girl's story about living with cystic fibrosis (CF). Read about the struggles Zoe and her family endured in her first year and the events that led to her CF diagnosis. Find out what a day in Zoe and her family's life is like and what Zoe's parents say are the four most important things parents can do for their child with cystic fibrosis.
Methicillin Resistant Staphylococcus aureus (MRSA) is becoming an increasingly common complication in people with cystic fibrosis. Learn more about MRSA, and find out what you can do to minimize your risk of getting a MRSA infection.
Failure to thrive (FTT) is often one of the first signs of cystic fibrosis (CF) in infants and young children. It is a scary term with an ugly name that can carry social stigma for parents from misinformed or uninformed friends, family members and even health care providers.
Most people with cystic fibrosis take panreatic enzyme replacements whenever they eat to allow them to absorb nutrients and avoid the discomforts of malabsorption. Learn what you need to know about pancrelipase, including possible side effects, safety warnings and financial assistance.
Spirometry is one of several tests during pulmonary function testing. Learn what spirometry is, how spirometry is done, and what the results mean for people with cystic fibrosis.
How does a doctor make a formal cystic fibrosis diagnosis? Over the last couple of decades, tests have been developed that allow cystic fibrosis diagnosis to be made even before the first symptom appears. Learn about the symptoms of cystic fibrosis, the tests used to diagnose cystic fibrosis and more, including what can be done to find out if a person carries the cystic fibrosis gene.
Wish granting organizations are groups that have funds to arrange special trips or other special moments for children and adults with chronic or life-threatening disease. Find a charitable organization to help make a dream come true for someone you know who is living with cystic fibrosis.
Pulmozyme (dornase alfa) is an important part of treatment for many people with cystic fibrosis. Learn what you need to know about Pulmozyme, including possible side effects, safety warnings and financial assistance.
People with cystic fibrosis (CF) take medications for their entire lives to control symptoms and prevent complications of the disease. Find out what you need to know about the most commonly prescribed CF medications.
When you’re ready to move beyond manual chest physiotherapy, there are several devices that you can use for airway clearance. Get to know these tools and how they can help you with your airway clearance routine.
Prenatal genetic tests can detect cystic fibrosis in your unborn child, but the testing is not for everyone. Find out who should be tested, how the test is done, and what the results will tell you.
An enzyme is a substance that initiates a chemical reaction.
What is a PICC line, and what does it mean to people with cystic fibrosis?
Do you know what to do to keep your feeding tube working as it should? Do you know how to recognize the signs of infection? What should you do if your feeding tube come out or becomes clogged? Get answers to these and other feeding tube do’s and don’ts.
Living with cystic fibrosis is expensive. Find resources to help ease the financial burden.
If you had a sinus infection, would you know it? Maybe not, if you have chronic sinusitis -- and if you have cystic fibrosis, chances are you do. Learn the symptoms of this condition that often goes unrecognized.
Are you wondering how you’re going to cover the expense of cystic fibrosis treatment? Find out about some resources that may be available to you, and areas where you may be able to cut corners.
If you're having problems with extreme mouth dryness, find out why it might be happening and what you can do about it.
Azithromycin is an antibiotic that is used to treat infection in people with or without cystic fibrosis(CF). Read about the way azithromycin is used in CF treatment including how it differs from use in other infections, possible side effects, safety warnings, and where to find financial assistance.
Chronic sinusitis is common among people with cystic fibrosis, often without their knowledge. Left untreated, sinus infections can cause problems for people with CF. Learn how to recognize chronic sinusitis, how chronic sinusitis is diagnosed, and how chronic sinusitis is treated.
Anti-inflammatory medications are sometimes prescribed to people with cystic fibrosis to help reduce swelling of air passages and improve lung function. Learn what you need to know about the different types of anti-inflammatory medications, including when and how anti-inflammatory medications are used in cystic fibrosis treatment, potential benefits and possible risks of anti-inflammatory use.
You know smoking is bad for you, but how does second hand smoke effect those with cystic fibrosis? How much smoke exposure is safe, and how much is dangerous? Find the answers to these, and other common questions about second-hand smoke and cystic fibrosis.
Delta F508 is the most commonly occuring mutation of the CFTR gene.
What do people with cystic fibrosis need to know about vitamin E? Learn about the types of vitamin E, the function of vitamin E in the body, foods that are rich in vitamin E and what this all means for people with cystic fibrosis.
What do people with cystic fibrosis need to know about vitamin K? Learn about the function of vitamin K in the body, foods that are rich in vitamin K and what this all means for people with cystic fibrosis.
What kind of doctor should you go to get the best possible treatment for cystic fibrosis? Once you find the right doctor, what should you do to establish care?
Most of the time, cystic fibrosis is diagnosed by the time a child is two years old. Occasionally, diagnosis is not made until adolescence or even adulthood. Read more about the incidence, prognosis, and treatment considerations of with late CF diagnosis.
In order to prevent troublesome complications, chronic sinusitis must be treated in people with cystic fibrosis. Learn about the treatment options available to those with cystic fibrosis.
Many people with cystic fibrosis use medications called bronchodilators to help improve lung function. Learn what you need to know about the bronchodilators used in cystic fibrosis treatment, including possible side effects, safety warnings and financial assistance.
Probiotics are friendly bacteria that are taken for health benefits. Read about the potential benefits of one probiotic organism, Lactobacillus rhamnosus GG (LGG), which has been shown to reduce inflammation in the lungs and intestines of cystic fibrosis patients.
What do people with cystic fibrosis need to know about vitamin A? Learn about the types of vitamin A, the function of vitamin A in the body, foods that are rich in vitamin A and what this all means for people with cystic fibrosis.
Most people with cystic fibrosis receive treatment at specialized CF care centers. Learn about CF center team members, goals of treatment, and guidelines for care.
Symptoms alone are not always enough to diagnose chronic sinusitis in people with cystic fibrosis, so how do you know if you have it? Find out more about the tests your doctor might order to diagnose chronic sinusitis.
The gene that causes cystic fibrosis
Women with cystic fibrosis can breastfeed their babies but will need to increase their calorie intake. If the baby does not grow properly, supplementation with formula may be required but breastfeeding is still beneficial. Find answers to common questions about breastfeeding in women with cystic fibrosis.
People choose to have genetic testing for cystic fibrosis for a variety of reasons, and there are several types of tests available. To help you make the right choices for you, you'll want to explore your reasons for testing, your plans for using the information you receive, and your plans for paying for the tests. Learn questions to ask yourself about genetic testing for CF.
Keeping the airways clear of mucus is one of the most important parts of cystic fibrosis treatment. There are several ways to do airway clearance. Learn about the most commonly used airway clearance methods and devices.
What is pancreatic insufficiency, and what does it mean to people with cystic fibrosis?
Basic genetic testing panels are sufficient for detecting cystic fibrosis in some patients, but sometimes advanced testing is needed to detect less common mutations. Learn more about reasons to have advanced testing, reasons not to have advanced testing, and about advanced testing options.
You want your home to be a clean, safe environment for your child with cystic fibrosis but you only have so many hours in a day. Do you really have to scrub every inch of your home to keep it clean enough? Find out more about how much cleaning you need to do.
Health insurance does not always cover the medications that people with cystic fibrosis need. Find out about companies you can turn to when your health insurance coverage falls short.
Progressive disease is a condition that gets worse over time.
Are your antimicrobial wipes making your house dirty? They might be, if you're not using them correctly.
Mucus is a slippery fluid secreted by glands to protect certain parts of the body.
What are the things you’ll need for your nebulizer treatment? Page 4.
People with cystic fibrosis can have active, fun summers as long as safety guidelines are followed.Find tips to help cystic fibrosis patients plan safe summer activities.
People with cystic fibrosis can't store fat soluble vitamins, but you need them to keep your body working properly. Learn which vitamins are fat soluble, the function each one performs, and foods you can eat that contain them.
After your child is diagnosed with cystic fibrosis, what should you do next? Learn what your five most important first steps should be.
Getting your child with cystic fibrosis to eat enough calories can be quite a challenge. Find out what you can do to sneak the fat and calories your child needs in to foods that he will love.
Lipase is one of the digestive enzymes produced by the pancreas.
What is bronchiectasis, and what does it mean to people with cystic fibrosis?
What is aspergillus and what does it mean to people with cystic fibrosis?
If you've been living with cystic fibrosis for a while, you have probably heard about the three foot rule. If you haven't heard about it, you will. Find out what the three foot rule is, and why it is an important rule for you to follow.
What is steatorrhea, and what does it mean to people with cystic fibrosis?
What kid doesn't love macaroni and cheese? Try this high-fat, high-calorie version that fits in perfectly with the cystic fibrosis diet.
Engages and draws reader into the characters' lives Includes Summerhayes family photos Honest, emotional,
What do people with cystic fibrosis need to know about vitamin D? Learn about the function of vitamin D in the body, foods that are rich in vitamin D and what this all means for people with cystic fibrosis.
What is a vector, and what does it mean for people with cystic fibrosis?
An allele is a genetic code that represents a specified trait.
Amylase is one of the digestive enzymes produced by the pancreas.
What are cilia and what do they have to do with cystic fibrosis?
Health insurance coverage is a must-have for people with cystic fibrosis, but finding coverage is not always easy. Find out where to turn to get the coverage you need.
What should you tell your child about cystic fibrosis? Should you tell him that he has a life-shortening disease, or is it better to just not say anything at all? When is the best age to talk about it, and how do you find the words to say?
Herbal supplements are becoming increasingly popular and readily available. Herbal supplements can be safe, but can also be very dangerous. It is important to know what to look for and how to protect yourself from harm caused by herbal supplements. Get the facts about safety of herbal supplements to help you decide if they are right for you.
What is glucose and what does it mean to people with cystic fibrosis?
Are you wondering what to expect when your child is in the hospital? Arm yourself with the knowledge you need to alleviate the fear of the unknown. Learn about the roles of the different caregivers you may have, differences in routine you may encounter, and some procedures that are commonly ordered for people with cystic fibrosis.
If you've had a child with cystic fibrosis (CF), does that mean all of your children will have CF? Is there a way to find out if your future children will also have CF?
What is malabsorption, and what does it mean to people with cystic fibrosis?
A group of chemical additives. Cystic Fibrosis.
If your child with cystic fibrosis is going to be heading off to school, you’ll want to make sure that his teachers are aware of his needs. Learn what your child’s school needs to know to help make his school experience a success.
What is a mucolytic, and what does it mean to people with cystic fibrosis?
The pancreas is a gland that secretes substances that control blood sugar and aid in digestion.
Protease is one of the digestive enzymes produced by the pancreas.
What is mucoviscidosis, and what does it mean to people with cystic fibrosis?
A twist on bacon and eggs that makes a perfect nutrient-dense dinner.
Recognizing signs of trouble is one of the most important things you can do to help your cystic fibrosis team keep things running smoothly between clinic visits. Learn what they are so you can head trouble off at the pass.
Is your child with cystic fibrosis getting ready to head off to school? You'll want to make some preparations first to pave the way to a great school experience. Learn strategies to help you choose the best school for your child. Also learn how to create an IEP or 504 plan to make sure your child's treatment needs do not interfere with learning.
What is CFRD and what does it mean to people with cystic fibrosis?
Need to boost your child's calorie intake? Try this 750 calorie-per serving milkshake that your child will love.
Looking for some good sites around the web to visit for cystic fibrosis info? These are my top picks for CF-related sites I think you'll find helpful.
What is insulin and what does it mean to people with cystic fibrosis?
Boswellia is an herbal supplement that has anti-inflammatory propoerties. Some people believe boswellia may be beneficial to reduce swelling in the lungs and intestines of people with cystic fibrosis. Learn about the risks and benefits of taking boswellia.
Clinical trials are research studies to test new medications or treatments. People with cystic fibrosis may be able to participate in a clinical trial and get treatment that is not available from their doctors. There are pros and cons to participating in clinical trials. Get the facts about clinical trials and learn where to find one that might be able to help you.