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Parenting a Child with CF

Parenting a child with cystic fibrosis can sometimes feel like a juggling act. Find tips, resources, and information to help you develop a strategy to find the balance between meeting your child's special needs and the usual demands of parenthood.

Talking to Kids About Cystic Fibrosis
How should parents talk to their children about cystic fibrosis? What, when, and how have you told your child about his condition? Share your advice with other parents who may be struggling to find the right words to say.

Talking to Your Child About Cystic Fibrosis
What should you tell your child about cystic fibrosis? Should you tell him that he has a life-shortening disease, or is it better to just not say anything at all? When is the best age to talk about it, and how do you find the words to say?

Is There a Way to Find Out if My Next Child Will Have Cystic Fibrosis, Too?
If you've had a child with cystic fibrosis (CF), does that mean all of your children will have CF? Is there a way to find out if your future children will also have CF?

What Your Child’s School Needs to Know About Cystic Fibrosis
If your child with cystic fibrosis is going to be heading off to school, you’ll want to make sure that his teachers are aware of his needs. Learn what your child’s school needs to know to help make his school experience a success.

Get Calories Into Your CF Child - How To Get Calories Into Yo…
Getting kids with cystic fibrosis to eat as much as they should can be a challenge, but with a bit of creativity it can be done. What things have you done to sneak extra calories in your child's diet?

Do I Need to Scrub My House Top to Bottom for My CF Child?
You want your home to be a clean, safe environment for your child with cystic fibrosis but you only have so many hours in a day. Do you really have to scrub every inch of your home to keep it clean enough? Find out more about how much cleaning you need to do.

Newborn Screening for Cystic Fibrosis - Personal Stories about Newbor…
Now that most states - and several countries - are screening newborns for cystic fibrosis, there are mixed feelings about it. Some say that newborn screening identifies babies before symptoms start, allowing them to receive early treatment and prevent complications. Others fear that false positives will lead to undue anxiety for parents and unnecessary testing for babies. What do you think? Was y…

Mighty Milkshake
Try this 750 calorie-per serving milkshake that your child will love.

How to Get Your Child with Cystic Fibrosis to Eat Enough
Getting your child with cystic fibrosis to eat enough calories can be quite a challenge. Find out what you can do to sneak the fat and calories your child needs in to foods that he will love.

Macaroni and Cheese
What kid doesn't love macaroni and cheese? Try this high-fat, high-calorie version that fits in perfectly with thecystic fibrosis diet.

Bacon and Cheese Quiche
A twist on bacon and eggs that makes a perfect nutrient-dense dinner.

Fettuccini Alfredo
This traditional recipe for fettuccine alfredo is full of fat and calories without any adjustments.

Who’s Going to Care for Your Child with CF?
Finding childcare for a child with cystic fibrosis can be difficult. Prescribed Pediatric Extended Care centers are one way to find a solution to childcare worries.

Going to School with Cystic Fibrosis
Is your child with cystic fibrosis getting ready to head off to school? You'll want to make some preparations first to pave the way to a great school experience.

Financial Assistance
Caring for a child with cystic fibrosis can be a financial struggle. Learn where to get help paying for some of the things your child will need.

Wish Granting Organizations
Is there something your child with cystic fibrosis would really love to do but you just don't have the resources to make it happen? Perhaps one of these organizations can make that dream a reality.

The Birds and the Bees
Adolescent pregnancy is a challenging situation for any girl, but it could be especially worrisome for a teenager with cystic fibrosis. Here, information on birth control options from the A.D.A.M. Health Encyclopedia.

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