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Back to School with Cystic Fibrosis

Jared and Corin/Flickr - http://flickr.com/photos/redjar/113897608/

Are You Ready?

For a child with CF, preparing for the new school year requires more than just buying supplies. Find out what you need to know.

CF Resources for Parents

About.com Health's Disease and Condition content is reviewed by Sanja Jelic, MD

Weeding Out the Myths About Herbs

Photo by Robert Mohlenbrock/USDA-NRCS Plants Database

Many people living with cystic fibrosis and other chronic illnesses are beginning to embrace the medicinal potential of herbs, many of which have been used since ancient times for medicinal purposes in Eastern cultures. But are herbs really safe?

Some Alternative Treatment Options

Cystic Fibrosis Blog with Lori Alma

Altus Stock Plummets Despite Good News About Trizytec

Saturday August 16, 2008

I’d like to say I understand the stock market, but sadly, I must admit that I don’t. I live in a world where good news is good, but that clearly is not the case in the financial sector. It seems that where investors are concerned, good news is sometimes not good enough. Despite the fact that Altus Pharmaceuticals reported positive preliminary results from its phase III clinical trial of a pancreatic enzyme called Trizytec, Altus stock tanked to an all-time low last week. The preliminary results of the Trizytec trial showed that it improved fat and protein absorption, but the improvements were not as significant as investors had hoped they would be.

Personally, I’m pretty pleased with the results. Trizytek is the first pancreatic enzyme that is not made from the pancreas of pigs, which would be a blessing for many people with cystic fibrosis who must take enzymes to prevent malnutrition but cannot tolerate, or choose not to consume pork products. Even if Trizytek cannot perform better than products already on the market, it certainly would provide an equivalent option for treatment that no other product can offer. Where’s the bad news in that, Wall Street?

Read more about preventing malnutrition in people with cystic fibrosis.

New Antibiotic for CF Treatment Hits the Shelves in India

Wednesday August 13, 2008

A new antibiotic aimed at treating the potentially deadly lung infections caused by Pseudomonas aeruginosa and methicillin resistant Staphylococcus aureus (MRSA) in people with cystic fibrosis(CF) has completed its phase III trial and received a stamp of approval from the Drug Controller General in India this week. Venus Remedies Limited manufactures the drug, called Tobracef, which is a combination of cephalosporin and aminoglycoside antibiotics. For now, Tobracef is only available in India, but Venus has applied for international patents and is hoping to gain FDA approval for the drug in the US within a few years.

So what medications are available in the US now for the treatment of P. aeruginosa in people with CF? Read more about:
Tobi
Azithromycin

Are there study drugs that might be able to help you?
Read more about clinical trials.

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