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When Should You Call The Doctor?

Ekaterina Staats | Dreamstime.com

Your child's cough sounds different today. Should you call the doctor? She's complaining of a tummy ache. Is that okay? When your child has cystic fibrosis, knowing what's normal and what isn't can be confusing. Learn how to tell the difference.

For The Newly Diagnosed

Cystic Fibrosis Blog with Lori Alma

Miley Cyrus Tattoo Chatter Raises CF Awareness

Sunday December 6, 2009

Thanks to Miley Cyrus and her new tattoo, the world is talking about cystic fibrosis. True, much of the chatter is centered on a debate of whether Miley's newly acquired "Just Breathe" tattoo is real or fake. I don't get caught up in that debate. Frankly, I don't really care. I just think it's great that cystic fibrosis, a disease that many people have never even heard of, is a household word right now since Miley is sporting a phrase beneath her breast that is often connected with cystic fibrosis. Since awareness is a key element in finding a cure, we owe this pop star a debt of gratitude. Thanks, Miley.

More about cystic fibrosis

Recreation Grants Help Those with CF Stay Active

Monday November 30, 2009

It can be pretty tough to make ends meet these days. Many folks are cutting corners and learning to get by with a lot less. Recreation is often one of the first expenses to get cut, but staying active is so important for those with cystic fibrosis - even in this struggling economy. If finances are keeping you from getting involved in activities, I've got some good news for you. The Cystic Fibrosis Lifestyle Foundation is offering $500 recreation grants to young adults with CF, and you may be eligible to receive one.

Visit the  Cystic Fibrosis Lifestyle Foundation website for more details on the grant, or to download an application.

B Cepacia Found in Vicks Sinex Nasal Spray

Sunday November 22, 2009

Earlier this year, I told you about a voluntary recall of Tylenol products because of possible contamination with Burkholderia cepacia. Now, I'm going to ask you all to check your medicine cabinets again.  Last Thursday, Proctor & Gamble issued a voluntary recall of three lots of Vicks Sinex Nasal spray sold in the United States, United Kingdom, and Germany because B. cepacia was found in some of the product that was manufactured in Germany but being sold in the United States.  The German and UK lot numbers are being recalled and undergoing testing because they were made from the same raw ingredients as the contaminated US lot.

The lot numbers and products being recalled are:

9239028831 ( United States) - Vicks Sinex Vapospray 12-Hour Decongestant Ultra Fine Mist, 15 ml

9224028832 (United Kingdom) - Vicks Sinex Micromist Aqueous Nasal Spray Solution, 15 ml

9224028833 (Germany) -  Wick Sinex Schnupfenspray Dosiersystem, 15 ml

If you find that you have any of the recalled products, do not use them. Visit Proctor and Gamble for information about  how to get a refund or replacement.

More about  B. Cepacia


What’s New With Cystic Fibrosis Research?

Monday November 2, 2009

If you're wondering what's new in the world of cystic fibrosis research, or if you're wondering how you can get involved with a clinical study, you won't want to miss the Cystic Fibrosis Foundation's upcoming webinar, "CF Clinical Research: Learn, Ask, Join".

The webcast, which is scheduled for November 19th, will feature basic principles of cystic fibrosis research, participation in clinical trials, and the latest updates about cystic fibrosis drugs currently being studied. The webinar is free but you have to pre-register on the CFF website.

How the Cystic Fibrosis Foundation Can Help You

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